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In the 1940's, CF was a fatal disease of early childhood.Today, thanks to advances in medical care, children can expect a much longer lifespan. Many attend college, marry, and lead very productive lives.It can also affect the sinuses, liver, spleen, and reproduction.
For other parents, the diagnosis comes at birth, when the child is found to have an intestinal blockage. Usually, there is no family history CF, so the diagnosis is a shock.Glands in the body that usually make thin, slippery secretions (like sweat, mucous, tears, saliva, or digestive juices) make, instead, thick, sticky secretions.These thick, sticky secretions plug the ducts (small tubes) that carry the secretions either outside the body or into hollow organs like the lungs or intestines.Most people with CF have to work hard to stay healthy.Their daily care and treatments can take a lot of time.
Distribution of the drug is delayed due to an annual cost of around €80m.